Who are we?
Shine is the largest organisation in Europe committed to improving the lives of people affected by the disabilities spina bifida and hydrocephalus. We are a network, a community, and a lifeline.
Shine enables people to get the best out of life!
What we do?
Shine provide specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional health and social care staff.
We work on a national and local level to provide these services through the following specialist service teams:
Support and Development Team - Health Development Team
Education Advisory Services - Occupational Therapist Development Worker
Through our regional structure these teams are accessible across Wales to ensure that all the information and support needed can be provided.
Some of our initiatives include:
Go Folic – Awareness raising campaign about the importance of taking Folic Acid
Shine40Plus – provides opportunities for people over the age of 40 living with Spina Bifida and/or Hydrocephalus to come together to make connections, share experiences and act as a collective voice for their pioneering generation. Shine40Pus is also aims to increase awareness of Normal Pressure Hydrocephalus - a condition which is often mistaken for Dementia but can easily be treated.
Contact us:
We’d love to hear from you!
Regional Co-ordinator Wales
Sian Prince
07789 616416 Sian.prince@shinecharity.org.uk
To get in touch generally e-mail: wales@shinecharity.org.uk or call 01733 555988
We provide information and support to people living with Spina Bifida and Hydrocephalus and their carers on the following: Folic Acid and pregnancymedical conditions and treatmentstaying healthybowel and bladder issuesbenefit...
