Provided by
The Ehlers-Danlos Support UK
Location
Postal Address
The Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes. Over 30 years later, we are the largest UK charity that exclusively represents and supports people with all types of EDS.
We work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it. We provide support throughout Wales by hosting local physical and virtual support groups led by trained volunteers and 1:1 support via our freephone helpline.
We maintain a website, issue regular newsletters, and publish materials to inform the EDS community, those with a specialist interest in the condition, and the wider public. You can find your local support groups here https://www.ehlers-danlos.org/support/support-groups/wales/