Tuberous Sclerosis Association

Tuberous Sclerosis Complex (TSC) is a complex genetic condition. People with TSC may have growths in various organs of the body and have epilepsy, learning disabilities, autism and kidney problems.
For families and individuals affected by TSC: TSA Advisers provide information and support by telephone, email, home visit; supporting on issues with health services, education or social care. Information about TSC is available from the website.
Members are able to meet together at events. Our online discussion forum helps people to make connections and provides support for parents, people with TSC or siblings. Our Support Fund can help where there is a special need not catered for by statutory services. For Professionals: Published material includes an illustrated brochure for doctors, leaflets for nurses and teachers and facsheets. Advisers visit schools and residential homes to give talks and advice.
An estimated 1 million people world-wide have TSC. Some will be diagnosed with TSC very early in life whilst others may not be diagnosed until later childhood, adolescence or adulthood.

CAN Mezzanine, 32-36 Lowman St, London, SE1 0EH
01239 710054 jenny.jones@tuberous-sclerosis.org

Tuberous Sclerosis Complex (TSC) is a complex genetic condition. People with TSC may have growths in various organs of the body and have epilepsy, learning disabilities, autism and kidney problems.
For families and individu...